Home Alone Revisited: Family Caregivers Providing Complex Care

Susan C. Reinhard
Heather M. Young
Carol Levine
Kathleen Kelly
Rita Choula
Jean Accius
April 2019

This resource builds on the seminal Home Alone study, the first national examination at how family caregivers manage medical and nursing tasks. Major findings of this new study include:

  • Today’s caregivers provide intense and complex care, including
    medical/nursing tasks and managing multiple health conditions.
  • Today’s caregivers and their experiences are diverse.
  • Caregivers who are socially isolated or have no choice about caregiving are more at risk for experiencing difficulties with complex care.
  • Many family caregivers are on their own, and health systems should do more to prepare these vital members of the team.
Posted to The Playbook on
Population Addressed
Adults Under 65 with Disabilities
People with Advanced Illness
Frail Older Adults
People with Multiple Chronic Conditions
People with Behavioral Health and Social Needs
Key Questions Answered
  • How do family caregivers manage tasks such as managing medications and changing dressings?
  • What are the motives, challenges, and burdens of these family caregivers?
  • How do these challenges differ among cultural groups?
Level of Evidence
Expert Opinion
What does this mean?