Home Alone Revisited: Family Caregivers Providing Complex Care

Authors
Susan C. Reinhard
Heather M. Young
Carol Levine
Kathleen Kelly
Rita Choula
Jean Accius
Brief/Report
April 2019

This resource builds on the seminal Home Alone study, the first national examination at how family caregivers manage medical and nursing tasks. Major findings of this new study include:

  • Today’s caregivers provide intense and complex care, including
    medical/nursing tasks and managing multiple health conditions.
  • Today’s caregivers and their experiences are diverse.
  • Caregivers who are socially isolated or have no choice about caregiving are more at risk for experiencing difficulties with complex care.
  • Many family caregivers are on their own, and health systems should do more to prepare these vital members of the team.
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